The Ryan Foundation
- A non-profit, all-volunteer organization dedicated to supporting research for, and the families of, those suffering from Mucopolysaccharidosis, or MPS. Find disease info, articles and links.
- http://www.ryanfoundation.org

Dana's Angels Research Trust
- Information from this charitable organization on Niemann-Pick Type C disease and how individuals can contribute funds for research for this fatal childhood disease.
- http://www.danasangels.org

American Society of Genetic Disorders
- Informs health professionals, legislators, health policy makers, and the general public about all aspects of human genetics.
- http://www.ashg.org/genetics/ashg/ashgmenu.htm

Hereditary Hemorrhagic Telangiectasia Foundation International, Inc.
- Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general publi
- http://www.hht.org/

Australian MPS & Related Diseases Society
- Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events.
- http://www.mpssociety.org.au

Hereditary Disease Foundation
- Information about this non profit organization, news, newsletters, recommended reading and contact details.
- http://www.hdfoundation.org

Genetic Interest Group
- Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
- http://www.gig.org.uk

Lysosomal Diseases New Zealand
- Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases.
- http://www.ldnz.org.nz