National Hydrocephalus Foundation, Inc.
- NHF goals are to facilitate a network for those affected by hydrocephalus, increase public awareness, and give moral support. Along with advocating research for the cause and prevention of this disorder.
- http://nhfonline.org

Hydrocephalus Association
- Non-profit support and advocacy group information on resources and education for families and individuals.
- http://www.hydroassoc.org/

The Hydrocephalus Foundation, Inc.
- Non-profit support organization provides information and resources for patients and families affected by hydrocephalus. Saugus, MA
- http://www.hydrocephalus.org/