Facio Scapulo Humeral Muscular Dystrophy (FSH-MD) Support Group
- Patients, families and carer run group, supporting those with FSH-MD. Disease information, newsletters, events and message board on-line.
- http://www.fsh-group.org/

Duchenne Family Support Group
- For families affected by Duchenne muscular dystrophy. Minimal information online but telephone helpline numbers supplied.
- http://www.dfsg.org.uk/

Parent Project UK
- A charity set up by parents and supporters of boys with Duchenne and Becker Muscular Dystrophy that promotes research to find a cure or viable treatments.
- http://www.ppuk.org/

Muscular Dystrophy Campaign
- Information about muscular dystrophy. Detailed information about duchenne, becker and many other neuromuscular conditions. Large text version of site available.
- http://www.muscular-dystrophy.org/