Prevention of Pulmonary Morbidity for Patients With Duchenne Muscular Dystrophy
- Study evaluating the effects of a new respiratory management protocol on respiratory morbidity and hospitalization rates for patients with Duchenne muscular dystrophy. From the American College of Chest Physicians.
- http://www.chestjournal.org/cgi/reprint/112/4/1024.pdf

General Practice Notebook - Duchenne muscular dystrophy
- Clinically-oriented information.
- http://www.gpnotebook.co.uk/simplepage.cfm?ID=-885719035

NINDS Muscular Dystrophy Information Page
- Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
- http://www.ninds.nih.gov/disorders/md/md.htm

DMD Pioneers
- Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
- http://www.dmdpioneers.org/

FSH-MD Support Group
- Provides support for those with Facio Scapulo Humeral and their carers.
- http://www.fsh-group.org/index2.html

Duchenne/Becker Muscular Dystrophy
- Includes key facts and animated slide shows of causes, diagnosis and treatment.
- http://www.ygyh.org/dmd/

Muscular Dystrophy Campaign
- Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
- http://www.see-search.com/musculardystrophycampaign.htm

Duchennes
- Provides links to medical and non-medical organizations and people with Duchennes problems.
- http://www.ducennes.addr.com/

Living For Today, Preparing For Tomorrow
- Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
- http://www.livingfortoday.org

MDA Ride For Life
- Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
- http://www.mdarideforlife.org/

National Registry of Myotonic Dystrophy and FSHD Patients and Family Members
- Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
- http://www.urmc.rochester.edu/nihregistry/

Becker Muscular Dystrophy Information Exchange
- Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
- http://www.beckermusculardystrophy.org