Parents of Polydactyly and Webbed Children
- A support board for those parents of children born with extra toes/fingers as well as webbing. A place to learn new information and make friends with others
- http://p200.ezboard.com/bparentsofpolydactylychildren

The Rainbow
- A forum for people who have chromosome abnormalites to show support, give advice and comfort.
- http://p221.ezboard.com/btherainbow

Peter's Anomaly Support Group
- An online support group for people dealing with Peter's Anomaly.
- http://www.petersanomaly.org/

X-Linked Alpha Thalassemia M/R Syndrome
- Features a Yahoo! group for family support for individuals caring for others affected by "Alpha Thalassemia Mental Retardation Syndrome (ATR-X).
- http://health.groups.yahoo.com/group/atr-x/

Yahoo Support Group for CMT-HMSN-HNPP
- A very active support group that prides itself on helping its members through the good - bad days and posting the latest CMT/HMSN/HNPP research information available on the web.
- http://health.groups.yahoo.com/group/CMT-Support/

Trisomy 18 Support Online Community
- Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.
- http://www.trisomy18support.org

Trisomy 18 Angel
- This site was made in memory of our daughter Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18.
- http://www.trisomy18angel.com

Trisomy 18 Moms
- A place to list your Trisomy 18, Edwards syndrome memorial site , get help making a website, to share your unique story via the web.
- http://www.t18moms.com/

Philadelphia, PA., Internet Support For Invisible/Hidden Disabilities
- The Philadelphia, PA., Internetsupport For invisible/hidden disabilities.
- http://groups.aol.com/_cqr/edsphilly3?mmch_=0

Forum for Patients with Myotonic Dystrophy 2
- A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
- http://groups.yahoo.com/group/MyotonicDystrophy2

Who is EPI ?
- The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria.
- http://www.porphyria-europe.com

Distal Trisomy 10q Families
- Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.
- http://trisomy10q.darylanderson.com

Lafora body disease research talk
- This is a discussion group about lafora body disease.
- http://groups.msn.com/laforabodydiseaseresearchtalk

Chromosome Help-Station
- Information on rare chromosomal disorders. Support and advice for families.
- http://www.chromosomehelpstation.com/

Yahoo Groups Floating Harbor
- An active support site for the parents and families of children with Floating Harbor Syndrome.
- http://groups.yahoo.com/group/floating_harbor/

Ideas
- A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
- http://idic15.org/

Cornelia de Lange Syndrome (CdLS) Foundation Outreach
- Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make infor
- http://www.cdlsusa.org

S.O.F.T.
- Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.
- http://www.trisomy.org/

Unique Rare Chromosome Disorder Support Group
- Support and information for families of children with rare disorders.
- http://www.rarechromo.org/

Chromosome 22 Central
- Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome, rings and unique malformations.
- http://www.nt.net/~a815/chr22.htm

Chromosome Deletion Outreach, Inc. (CDO)
- Non-profit voluntary support group for families affected by rare chromosome disorders.
- http://www.chromodisorder.org/

Alliance of Genetic Support Groups
- National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
- http://www.geneticalliance.org/

Online Genetic Syndrome Support Groups
- Sites are listed alphabetically by disease/condition.
- http://members.aol.com/dnacutter/sgroup.htm