NORD - Pierre Robin Syndrome
- Sample report, plus links to organisations. [Fee required for full report]
- http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome

Chase's Story
- Personal account of one child's experience of this condition. Includes photographs.
- http://www.pierrerobin.com

Contact a Family: Pierre Robin Syndrome
- Main features of the condition and possible causes.
- http://www.cafamily.org.uk/Direct/p24.html

Pierre Robin Network
- Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
- http://www.pierrerobin.org