Web Directory

  Cystinosis (8)

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Cornea and External Diseases - Cystinosis Open in a new windowLink Details
- Features photographs of an affected eye, information on clinical features and treatment.
- http://dro.hs.columbia.edu/cystinosis.htm

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Cystinosis Clinical Resources Open in a new windowLink Details
- Portal features annotated links for health professionals.
- http://cchs-dl.slis.ua.edu/clinical/metabolism/inborn/lysosomalstorage/membranetransportdisorders/cystinosis.htm

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EyeRounds.org: Cystinosis Open in a new windowLink Details
- Doctors Andrew Doan and Andrew Lee describe the diagnosis of a young girl with the condition. Features information on the epidemiology, signs, symptoms and prescribed treatment.
- http://webeye.ophth.uiowa.edu/eyeforum/cases/case4.htm

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The Cystinosis Foundation UK Open in a new windowLink Details
- Charity dedicated to assisting those with Cystinosis, their families, medical researchers and increasing the awareness of this condition.
- http://www.cystinosis.org.uk

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Cystinosis Research Foundation Open in a new windowLink Details
- Natalie's Wish is a non-profit organization. Their mission is to fund research to find better medications and ultimately a cure for this condition.
- http://www.natalieswish.org

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Cystinosis Foundation Open in a new windowLink Details
- Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.
- http://www.cystinosisfoundation.org

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Cystinosis Research Network Open in a new windowLink Details
- Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
- http://www.cystinosis.org

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Cystinosis Central Open in a new windowLink Details
- Information about this disorder, conferences, data for physicians, updates and links.
- http://medicine.ucsd.edu/cystinosis/INDEX.htm

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