Pediatric Oncall
- Information on porphyrias including the various types and its management.
- http://www.pediatriconcall.com/fordoctor/diseasesandcondition/porphyrias.asp
Porphyria
- From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
- http://groups.yahoo.com/group/porphyria/
Porphgroup
- An e-mail group at Yahoo dealing with the metabolic disease porphyria.
- http://groups.yahoo.com/group/porphgroup/
Suite 101
- Offers links and articles about Porphyria.
- http://www.suite101.com/welcome.cfm/porphyria
Acute Intermittent Porphyria Forum
- Information and links about Porph. Includes registration form for an email list.
- http://members.tripod.com/~theaipforum/
Me and AIP
- Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
- http://hometown.aol.com/heyjude957/aip.html
EPP
- Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
- http://members.tripod.com/~Alzuko/epp.htm
Porphyria: The Unknown Disease
- Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
- http://members.tripod.com/~PorphBook/
Diagnosing the Porphyrias
- An article by Thomas G. DeLoughery, Associate Professor of Medicine.
- http://www.ohsu.edu/som-hemonc/handouts/deloughery/por.shtml
Canadian Porphyria Foundation
- Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
- http://www.cpf-inc.ca/
King George II and Porphyria
- Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
- http://www.mhhe.com/biosci/ap/seeleyap/cardio/reading20.mhtml
Porphyrias: Diagnosis and Treatment
- Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
- http://www.medstudents.com.br/metdis/metdis3.htm
Porphyria Page
- A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
- http://www.uq.edu.au/porphyria/