Not Going Quietly - Comprehensive personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery. - http://www.notgoingquietly.com
Matt's Mansion - Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel. - http://www.matthewlaw.co.uk/
Friedreich's Ataxia Fact Sheet - A comprehensive resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. - http://www.ninds.nih.gov/disorders/friedreichs_ataxia/detail_friedreichs_ataxia.htm
Friedreich's Ataxia Parents Group - With advice for new parents on the disease, and on how the parent might better cope emotionally. - http://www.fortnet.org/fapg/
Friedreich's Ataxia Research Alliance - Non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure. - http://www.faresearchalliance.org/
Friedreichs Ataxia Society Ireland - Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues. - http://www.ataxia.ie/
Patient loses right-to-food fight - The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life. - http://news.bbc.co.uk/2/hi/health/5257252.stm
Swiss Association of Friedreich Ataxia - Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research. - http://www.achaf.org/
Friedreich's Ataxia and I - The author was diagnosed with Friedreich's Ataxia when eight years old. Read about the trials and triumphs. - http://www.ohbother.co.uk/25591.html
NORD: Friedreich's Ataxia - Offers the synonyms, a general discussion and further resources. - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ataxia,%20Friedreich's
GeneClinics: Friedreich Ataxia - An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management. - http://www.geneclinics.org/profiles/friedreich/