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  Friedreich's Ataxia (13)

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Not Going Quietly Open in a new windowLink Details
- Comprehensive personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.
- http://www.notgoingquietly.com

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Matt's Mansion Open in a new windowLink Details
- Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.
- http://www.matthewlaw.co.uk/

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Friedreich's Ataxia Fact Sheet Open in a new windowLink Details
- A comprehensive resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- http://www.ninds.nih.gov/disorders/friedreichs_ataxia/detail_friedreichs_ataxia.htm

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Friedreich's Ataxia Parents Group Open in a new windowLink Details
- With advice for new parents on the disease, and on how the parent might better cope emotionally.
- http://www.fortnet.org/fapg/

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Friedreich's Ataxia Research Alliance Open in a new windowLink Details
- Non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure.
- http://www.faresearchalliance.org/

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Friedreichs Ataxia Society Ireland Open in a new windowLink Details
- Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.
- http://www.ataxia.ie/

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Friedreich Ataxia Research Association Open in a new windowLink Details
- Summarises recent progress in ataxia research and the search for better treatment.
- http://www.fara.org.au/

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Patient loses right-to-food fight Open in a new windowLink Details
- The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life.
- http://news.bbc.co.uk/2/hi/health/5257252.stm

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Swiss Association of Friedreich Ataxia Open in a new windowLink Details
- Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research.
- http://www.achaf.org/

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Friedreich's Ataxia and I Open in a new windowLink Details
- The author was diagnosed with Friedreich's Ataxia when eight years old. Read about the trials and triumphs.
- http://www.ohbother.co.uk/25591.html

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NORD: Friedreich's Ataxia Open in a new windowLink Details
- Offers the synonyms, a general discussion and further resources.
- http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ataxia,%20Friedreich's

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GeneClinics: Friedreich Ataxia Open in a new windowLink Details
- An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management.
- http://www.geneclinics.org/profiles/friedreich/

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