Tuberous Sclerosis Alliance
- US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
- http://www.tsalliance.org/

Team Tamara
- Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
- http://www.team-tamara.org

NORD: Tuberous Sclerosis
- Offers alternative names, a general discussion and further resources.
- http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Tuberous%20Sclerosis

Tuberous Sclerosis Fact Sheet
- Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
- http://www.ninds.nih.gov/health_and_medical/pubs/tuberous_sclerosis.htm

Pediatric Oncall- Tuberous Sclerosis
- Offers commonly asked questions about this disease.
- http://www.pediatriconcall.com/forpatients/CommonChild/tuberous_sclerosis.asp

Tuberous Sclerosis
- A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- http://www.ninds.nih.gov/health_and_medical/disorders/tuberous_sclerosis.htm

Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program
- Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
- http://www.cincinnatichildrens.org/Programs_Services/229/index.asp

Tuberous Sclerosis - Lisa's Site
- An incurable genetic condition that causes tumors to grow in various places in the body.
- http://www.title14.com/ts/

Tuberous Sclerosis Association
- UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
- http://www.tuberous-sclerosis.org/