FightSMA
- Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
- http://www.fightsma.org/

SMA Support Inc.
- A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
- http://www.smasupport.com

The Sean W. Venezia Foundation
- Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
- http://www.smafund.org

Spinal Muscular Atrophy Foundation
- Information on SMA, and the latest updates in research, treatment and funding.
- http://www.smafoundation.org

Our SMA Angels
- Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
- http://www.our-sma-angels.com

Elizabeth's Page
- Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
- http://www.our-sma-angels.com/elizabeth/

Families of Spinal Muscular Atrophy Canada
- Canadian charity supports research into a cure for SMA.
- http://www.fsma.org/canada/

Theo's Story with SMA
- A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
- http://www.mysunrise.ch/users/af.mast/

Washington University of St. Louis: Neuromuscular
- Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
- http://www.neuro.wustl.edu/neuromuscular/synmot.html

GeneClinics SMA Information Page
- Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
- http://www.geneclinics.org/profiles/sma/index.html

Ilsa's SMA Resources
- A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
- http://www.smaangel.com

Families of SMA (Spinal Muscular Atrophy)
- International support group and resource center for this disease, includes current research.
- http://www.fsma.org

SMA Angels Support Site
- A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
- http://www.smaangels.com