Families for HoPE
- A nonprofit organization providing support to families of infants and children diagnosed with holoprosencephaly. Contains glossary, medical terminology and information about the condition.
- http://www.familiesforhope.com/

Yahoo! Groups: Ausholoprosencephaly
- Support group for parents and families of children with holoprosencephaly within Australia.
- http://groups.yahoo.com/group/ausholoprosencephaly

Yahoo! Groups: HPElosssupport
- For parents and families who have lost children to Holoprosencephaly.
- http://health.groups.yahoo.com/group/HPElosssupport/

Yahoo! Groups: Holoprosencephaly
- Support group for parents and families affected by HPE.
- http://health.groups.yahoo.com/group/holoprosencephaly/