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  Marfan Syndrome (25)

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Marfans Research Foundation Open in a new windowLink Details
- Irish charity with information on fund raising activities and the condition.
- http://www.marfansresearchfoundation.ie

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Marfan Syndrome Open in a new windowLink Details
- Online chapter from The Merck Manual of Medical Information.
- http://www.merck.com/mrkshared/mmanual_home2/sec23/ch279/ch279c.jsp

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Questions and Answers about Marfan Syndrome Open in a new windowLink Details
- From the National Institutes of Health.
- http://www.niams.nih.gov/hi/topics/marfan/marfan.htm

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MFS Type 1 Fibrillin Gene Open in a new windowLink Details
- A comprehensive site including major resources listed as well as genetic information.
- http://www3.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=154700

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South African Marfan Syndrome Organisation Open in a new windowLink Details
- Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
- http://www.marfan.org.za

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Marfan Support and Information Open in a new windowLink Details
- Support group in New South Wales, Australia.
- http://www.marfan.net.au

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Living With Marfans Open in a new windowLink Details
- This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
- http://jrmarfan58.com

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Marfan Syndrome: Does Diet Play a Role Open in a new windowLink Details
- Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
- http://www.ctds.info/marfan.html

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A Diary about Marfan's Open in a new windowLink Details
- Marfan's patients diary of the diseases events in her life. Includes a list of links.
- http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html

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The Mystery of Akhenaten: Genetics or Aesthetics? Open in a new windowLink Details
- A history of the pharoah along with theories applied to what he may have had, including Marfan's.
- http://www.heptune.com/Marfans.html

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Central Ohio Marfan Support Group Open in a new windowLink Details
- Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
- http://www.homestead.com/marfansupport/

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Marfan Syndrome Forum Open in a new windowLink Details
- Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
- http://hometown.aol.com/bjthaler6/myhomepage/

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Swedish Marfan Association Open in a new windowLink Details
- Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
- http://user.tninet.se/~sda301a/

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Polish Marfan Association Open in a new windowLink Details
- General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
- http://www.marfan.sprint.pl/

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Univ. of Washington - Marfan Syndrome Open in a new windowLink Details
- What the disease is and includes the impacts on daily life.
- http://www.orthop.washington.edu/arthritis/types/marfan/01

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International Federation of Marfan Syndrome Organizations Open in a new windowLink Details
- A global information center providing links to Organizations around the world.
- http://www.marfanworld.org/

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American Heart Association - Marfan's Syndrome Open in a new windowLink Details
- Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
- http://www.americanheart.org/presenter.jhtml?identifier=4672

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Slovak Marfan Association Open in a new windowLink Details
- The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
- http://members.fortunecity.com/marfan

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Life and Issues of Marfan's Syndrome Open in a new windowLink Details
- Personal site by which describes the pathology and gives a bit of advice.
- http://www.io.com/~cortese/marfan/

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Canadian Marfan Association Open in a new windowLink Details
- Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
- http://www.marfan.ca/

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National Marfan Foundation Open in a new windowLink Details
- Providing accurate and timely information about the disorder to patients, family members and physicians.
- http://www.marfan.org/

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Marfan Association UK Open in a new windowLink Details
- The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
- http://www.marfan.org.uk

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Last Updated: 2007-08-23 15:59:13