MFS Type 1 Fibrillin Gene
- A comprehensive site including major resources listed as well as genetic information.
- http://www3.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=154700
South African Marfan Syndrome Organisation
- Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
- http://www.marfan.org.za
Living With Marfans
- This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
- http://jrmarfan58.com
Marfan Syndrome: Does Diet Play a Role
- Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
- http://www.ctds.info/marfan.html
A Diary about Marfan's
- Marfan's patients diary of the diseases events in her life. Includes a list of links.
- http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html
Central Ohio Marfan Support Group
- Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
- http://www.homestead.com/marfansupport/
Marfan Syndrome Forum
- Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
- http://hometown.aol.com/bjthaler6/myhomepage/
Swedish Marfan Association
- Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
- http://user.tninet.se/~sda301a/
Polish Marfan Association
- General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
- http://www.marfan.sprint.pl/
Univ. of Washington - Marfan Syndrome
- What the disease is and includes the impacts on daily life.
- http://www.orthop.washington.edu/arthritis/types/marfan/01
American Heart Association - Marfan's Syndrome
- Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
- http://www.americanheart.org/presenter.jhtml?identifier=4672
Slovak Marfan Association
- The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
- http://members.fortunecity.com/marfan
Life and Issues of Marfan's Syndrome
- Personal site by which describes the pathology and gives a bit of advice.
- http://www.io.com/~cortese/marfan/
Canadian Marfan Association
- Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
- http://www.marfan.ca/
National Marfan Foundation
- Providing accurate and timely information about the disorder to patients, family members and physicians.
- http://www.marfan.org/
Marfan Association UK
- The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
- http://www.marfan.org.uk