Online Mendelian Inheritance in Man
- Describes many case reports of FSS (also known as whistling face windmill vane hand syndrome), with references and a summary of the state of knowledge of the genetics.
- http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=193700

National Craniofacial Association
- Summarizes the child's likely needs, and has links to other resources.
- http://www.faces-cranio.org/Disord/Freeman.htm

Freeman-Sheldon Parent Support Group
- Includes a members-only area with a bulletin board and pictures of afflicted children.
- http://www.fspsg.org/

Geneva Foundation for Medical Education and Research
- Several pictures of children with typical FSS characteristics.
- http://www.gfmer.ch/genetic_diseases_v2/gendis_detail_list.php?cat3=358

Freeman-Sheldon Syndrome - Wikipedia
- Detailed description of incidence, nosology, inheritance, and condition management.
- http://en.wikipedia.org/wiki/Freeman-Sheldon_syndrome