Post Polio Syndrome (21)
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Gazette International Networking Institute (GINI) 
- Coordinator of International Polio Network (IPN) and International Ventilator Users Network (IVUN), collects, creates, and disseminates information for people with disabilities, specifically polio survivors and ventilator users. Information includes newsl
- http://www.post-polio.org
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Post-Polio Syndrome Central - Search or browse this comprehensive listing of PPS [postpolio, post polio syndrome] internet resources, original papers, surveys and polls.
- http://www.skally.net/ppsc/
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Post-Polio Resource Group of SE Wisconsin - Formed by polio survivors to provide information and support to polio survivors and their families and to educate the medical community and the general public about post-polio syndrome (PPS). - http://www.pprg.org    Post Polio Awareness Support Society Minnesota - State wide group of Polio survivors organized to assist other survivors. - http://www.ppassmn.org San Diego Polio Survivors - Support group. Profile, activities, membership, calendar, photographs, contact information. - http://home.mindspring.com/~polio/ New Jersey Polio Network - Information and news of interest to polio survivors, their families, and the healthcare community. Links, local chapters, newsletter and conference updates, advocacy. - http://njpolio.org/ British Polio Fellowship - Information about this British PPS support group. PPS Q&A, publications, library, news and message board. - http://www.britishpolio.org/ North Central Florida Post-Polio Support Group - Educates and informs polio survivors, healthcare professionals and family about polio, post-polio syndrome and care in polio vaccination. - http://www.postpoliosupport.com Post Polio Syndrome Forum - A web discussion forum for people who have or think they have Post Polio Syndrome. A forum where all are welcome, and to share from a-z pertaining to their PPS. disability. - http://forums.delphiforums.com/bigcrusher/start Living With Post-Polio Syndrome - Medical College of Wisconsin, Living with Post-Polio Syndrome, theories, information and a few links - http://healthlink.mcw.edu/article/996372413.html NINDS Post-Polio Syndrome Information Page - Post-Polio Syndrome information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke. - http://www.ninds.nih.gov/health_and_medical/disorders/post_polio_short.htm Greater Boston Post-Polio Association - Support and selected resources for polio survivors now experiencing the effects of post-polio syndrome, plus information on several Massachusetts PPS support groups. - http://gbppa.org How to Prevent Further Disability In Polio Survivors - Silver 1999 - PPS expert lists things to do and not to do. - http://www.skally.net/ppsc/silver2.html Post-Polio Network of New South Wales Australia - PPS information, Australian Support Groups, Seminars, newsletters, articles and general Australian disability information. - http://www.post-polionetwork.org.au/index2.html Why PPS Is So Hard To Understand-Bollenbach 1999 - Description of muscle types, muscles indirectly affected by PPS, how PPS differs from ALS, immune vs autoimmune. - http://www.skally.net/ppsc/und.html PPS Related Events, Seminars and Conferences - Calendar of non-commercial events concerning post-polio syndrome. - http://www.skally.net/ppsc/event.html Post Polio Syndrome Responses - A personal web page with links to Polio/PPS and other Disability Information. - http://www.ppsr.com/ Post-Polio-Med Email List - Forum for researchers, medical professionals, polio survivors, and anyone interested in PPS: for research and treatment issues, conferences, support group meetings, and other related topics. - http://www.skally.net/ppmed/ Lincolnshire Post-Polio Network - An information service for polio survivors and medical professionals. Website offers an expanding online library of currently over one hundred full text articles on post-polio conditions, plus a bi-monthly newsletter and a categorised directory of healthc - http://www.zynet.co.uk/ott/polio/lincolnshire/ |
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