Sturge-Weber Syndrome Community
- Organization for individuals and families affected by SWS.
- http://swscommunity.org/

Sturge-Weber Syndrome Center
- Clinical center dedicated to the treatment and study of SWS at Johns Hopkins Hospital in Baltimore. Find disease information, diagnosing, and treatment as well as details about the facility.
- http://www.neuro.jhmi.edu/HopkinsSWSCenter/index.htm

NORD: Sturge Weber Syndrome
- Offers a list of synonyms, a general discussion and further resources.
- http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Sturge%20Weber%20Syndrome

The Sturge-Weber Foundation
- A support site for individuals and professionals dealing with Sturge-Weber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research.
- http://www.sturge-weber.com/