Frankiepants
- Personal site about a child with this disorder. Provides details about the condition.
- http://www.frankiepants.com

MPS III
- Information, including the causes, different forms, the inheritance and how the disorder progresses.
- http://www.mpssociety.org/content/4039/MPS_III/

The Sanfilippo Children's Research Foundation
- Canadian based charitable group founded by the parents of Elisa Linton.
- http://www.alifeforelisa.org/

Bennett Children's Foundation
- Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
- http://www.claritystudio.com/helpachild/

Special Child: Disorder Zone Archives - Sanfilippo Syndrome
- Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect.
- http://www.specialchild.com/archives/dz-034.html

Children's Medical Research Foundation
- Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
- http://www.curekirby.org/

Ben's Dream
- Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
- http://www.bensdream.org