Web Directory

  Proteus Syndrome (5)

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Woman's 11-stone legs may be lost Open in a new windowLink Details
- The BBC reports on a Lancashire woman's campaign to raise awareness of a condition which has left her with 11-stone legs.
- http://news.bbc.co.uk/2/hi/uk_news/england/lancashire/6621331.stm

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Pediatric Oncall Open in a new windowLink Details
- Find a proteus syndrome case report, including CXR and radiographs.
- http://www.pediatriconcall.com/fordoctor/casereports/Proteus_syndrome.asp

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NORD: Proteus Syndrome Open in a new windowLink Details
- Offers synonyms, a general discussion and further resources.
- http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Proteus%20Syndrome

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The CaF Directory Open in a new windowLink Details
- A definition of Proteus syndrome, its inheritance pattern, pre-natal diagnosis and a support group.
- http://www.cafamily.org.uk/Direct/p50.html

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Proteus Syndrome Foundation Open in a new windowLink Details
- Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters.
- http://www.proteus-syndrome.org/

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