NORD: Ectodermal Dysplasias
- Offers synonyms, a general discussion and resources.
- http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias

Ectodermal Dysplasia Society
- Information about the organization as well as the ED condition. Includes links, news articles and contact details.
- http://www.ectodermaldysplasia.org/

The Ectodermal Dysplasia Mailing List
- Includes instructions on joining the list, FAQs and links to further resources.
- http://hometown.aol.com/charliein/ed/home.html

National Foundation for Ectodermal Dysplasia
- ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
- http://www.nfed.org/

The Andy Fund
- Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
- http://www.andy.org.mx

The CaF Directory
- Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
- http://www.cafamily.org.uk/Direct/e14.html