YourLungHealth.org : Cystic Fibrosis
- Explains this complex disease, including symptoms, causes, diagnosis, current treatments, prevention, and links to additional information.
- http://www.yourlunghealth.org/lung_disease/cystic_fibrosis/index.cfm
Cystic Fibrosis Western Australia
- Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
- http://www.cysticfibrosis.org.au
Pulmozyme.com
- Cystic fibrosis information, symptoms, and treatments. Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc.
- http://www.pulmozyme.com
Clayton Bates Cystic Fibrosis Support Site
- For family, friends, and other supporters to find out about the disease and offer support for Clayton.
- http://www.claytonbates.org
Medline Plus - Cystic Fibrosis
- A comprehensive source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.
- http://www.nlm.nih.gov/medlineplus/cysticfibrosis.html
CysticFibrosis.com
- Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
- http://cysticfibrosis.com/
A-Z Directory of Cystic Fibrosis Resources
- Biomedical directory with listings of hospitals, charities, research, and information by topic and location.
- http://www.cellscience.com/CFmain.html
Irri Shark's Page
- About the '65 roses' story.
- http://hometown.aol.com/irrishark/page/index.htm
Home Page-Harminder
- Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true.
- http://student.biology.arizona.edu/honors96/group9/Page2.html
Cystic Fibrosis Resource Centre
- A source of information for cystic fibrosis patients, parents, doctors and other carers.
- http://www.cysticfibrosis.co.uk
Cystic Fibrosis Medicine
- Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
- http://www.cysticfibrosismedicine.com
The Spirit of Lo - Inspirational Book
- Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
- http://www.spiritoflo.com
CF Prescriber
- Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.
- http://www.cfprescriber.com/
Jewish Genetic Diseases - Cystic Fibrosis
- Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.
- http://www.mazornet.com/genetics/cystic_fibrosis.asp
The Breathing Room
- Guidance about the art of living with cystic fibrosis.
- http://www.thebreathingroom.org
Cystic Fibrosis Links
- Cystic Fibrosis Links and Information
- http://www.goodgulf.com/cystic.html
Cystic Fibrosis Health FactSheet
- Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
- http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html
Cystic Fibrosis Resource Center
- Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
- http://www.healingwell.com/cysticfibrosis/
MyCysticFibrosis.com
- Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
- http://www.mycysticfibrosis.com