Coffin-Lowry Syndrome Foundation
- Non-profit organization and international support group. Available in English, French and Spanish.
- http://clsf.info

NINDS: Coffin Lowry Syndrome
- Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
- http://www.ninds.nih.gov/disorders/coffin_lowry/coffin_lowry.htm

NORD: Coffin Lowry Syndrome
- General information about this syndrome, its alternative names and further resources.
- http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Coffin%20Lowry%20Syndrome

National Library of Medicine: Coffin-Lowry Syndrome (CLS)
- A table showing the synonyms, a summary and major features.
- http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome238.html