Nora Thomas
- Born 4/27/2007 with short bowel syndrome this blog charts Nora's progress and provides information on Short Bowel treatments.
- http://www.norathomas.com
Seth's Story
- Seth was born at 32.5 weeks gestation with the majority of his intestines exposed. The exposed intestine was also gangrenous, thus he lost most of his small intestine.
- http://sethsstory.homestead.com/
Discovery Health: Short Bowel Syndrome
- Images, causes, risks, signs and symptoms, diagnosis and treatment.
- http://health.discovery.com/encyclopedias/illnesses.html?article=2414
Children
- Information about this disease in the childhood: etiology, diagnoses and treatments, provided by Children's Hospital Boston.
- http://www.childrenshospital.org/az/Site1581/mainpageS1581P0.html
Aaron's Gift Of Life
- Personal page of the parents of this child after a lot of main surgeries and intestinal and liver transplants.
- http://mysite.wanadoo-members.co.uk/Aarons_gift_of_life
Zorbtive [somatropin (rDNA origin) for injection]
- Information about the use of somatropin (rDNA origin) in a damaged or resected short intestine. Patient handbook available.[PDF format]
- http://www.zorbtive.com
Help Stephanie
- A twelve years old girl suffered from a near-fatal chain of events that caused her to lose her small bowel. Her story, news and articles related collected by the Stephanie's Foundation for Intestinal Disorders - SFID.
- http://www.helpstephanie.org
Nutritional Information
- Definition, early and long term nutritional support nutrition assessment, intervention and outcome.
- http://depts.washington.edu/growing/Assess/SBS.htm
No Guts Country Club
- Association providing information, support by mailing list, newsletter and contact by e-mail to patients with a short bowel syndrome.
- http://www.noguts.us
MedlinePlus: Short Bowel Syndrome
- Illustrations, definition, incidence, risk factors, diagnosis, treatment and prognosis of this disease.
- http://www.nlm.nih.gov/medlineplus/ency/article/000237.htm
Epidemiology
- Frequency, etiology, pathophysiology, anatomy, diagnosis, lab results and treatment in an article by e-Medicine.
- http://www.emedicine.com/med/topic2746.htm
eMedicine: Short Bowel Syndrome
- Etiology, history, physiology, evolution, dietary, medical and surgical treatment of this illness in the childhood.
- http://www.emedicine.com/ped/topic2088.htm
Kaya Estlyn Shepherd-Poppick's Home Page
- Kaya Estlyn Shepherd-Poppick's story. She has had an intestine transplant for this disease and her family gives support by information and e-mail to patients needing it.
- http://users.montanadsl.net/~jelb7869/
The Oley Foundation
- Organization providing advocacy and extensive information services to those on nutrition therapy for SBS and other conditions.
- http://c4isr.com/oley/