Starbright Foundation
- Features empowerment programs for seriously ill children. Includes chatrooms, videos, comic books, and cd-roms.
- http://www.starlight.org/site/c.fuLQK6MMIpG/b.1038035/k.BDF4/Home.htm

Pain and Chronic Illness in Children
- Short paper on the importance of pain management.
- http://www.touchbriefings.com/pdf/14/lth031_r_cowley.PDF

Youth in Transition
- Article on transitions in youth with chronic health disorders advises their caregivers in assisting to gradual independence and self-management.
- http://www3.bc.sympatico.ca/steeksma/Medical/transition.htm

The Child With a Long-Term Illness
- AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse.
- http://www.aacap.org/publications/factsfam/illness.htm

Dealing With a Health Condition
- Explains teenagers how to cope, to take control, deal with others.
- http://kidshealth.org/teen/your_mind/problems/deal_chronic_illness.html

Shared Vision
- Complete article (also as PDF) on longterm needs, financial and medical planning.
- http://pediatrics.aappublications.org/cgi/content/full/105/1/S2/277

Children and Grief
- Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families).
- http://www.aacap.org/publications/factsfam/grief.htm

Adolescents Psychological Complications of Chronic Illness
- Information from The Child Health Library of Children's Hospital of Pittsburgh.
- http://www.chp.edu/greystone/mentalhealth/pcci.php

Promoting Resilience in Youth with Chronic Conditions and their Parents
- Paper on family centered care, describes impact, principles, assessment, healthy family functioning.
- http://www.allaboutkids.umn.edu/kdwbvfc/FamilyMonograph.PDF

Teenagers and Coping with Chronic Illness
- Tips and strategies for parents with newly diagnosed teenagers.
- http://www.irishhealth.com/?level=4&id=455#top

Parental Advise on Coping with Chronic Illness of your Child
- Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers.
- http://www.parenting-ed.org/handout3/Specific Concerns and Problems/coping with chronic illness.htm