Cystic Hygroma and Fetal Hydrops
- From bereaved parents. Site has an explanation of cystic hygroma and more resources.
- http://www.bereavedparents.com/medical/cystichygroma.php

Children's Craniofacial Association
- A national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families.
- http://www.ccakids.com/

Cystic Hygroma
- An article explaining this disorder and a support group for sharing.
- http://www.cafamily.org.uk/Direct/c95.html

Association of Birth Defect Children, Inc.
- Charitable organization started by parents in 1982.
- http://www.birthdefects.org/