Desmoid Tumor Research Foundation
- Non-profit that funds research, increases awareness, and provides support for patients. Headquartered in Suffern, New York.
- http://dtrf.org

Desmoid Tumor Treatment Options
- Opinion, treatment, surgery, therapy, and recommended reading.
- http://www.treatment-options.com/article.cfm?PubID=ON01-3-2-03&Type=Article&KeyWords=

ACOR: Desmoid Tumor Group
- Information about how to join the group. Also archives available.
- http://listserv.acor.org/archives/desmoid.html

The Fibromatosis /Desmoid Tumour Site
- Personal experiences of diagnosis and treatment for fibromatosis and the aggressive benign Desmoid tumor.
- http://whippetrun_bc.tripod.com/the_fibromatosis_page/

UCFS Children's Hospital: Desmoid Tumors
- Description of the benign tumors, symptoms, diagnosis, and treatment.
- http://www.ucsfhealth.org/childrens/medical_services/cancer/sarcomas/conditions/desmoid

eMedicine: Desmoid Tumor by Matthew J Trovato, MD
- Overview of the rare benign fibrous neoplasms originating from the musculoaponeurotic structures throughout the body.
- http://www.emedicine.com/derm/topic778.htm