Fanconi
- Yahoo list group for sufferers of this condition.
- http://health.groups.yahoo.com/group/fanconi/
Blackfan
- Yahoo list group for Diamond Black Fan Anemia sufferers.
- http://health.groups.yahoo.com/group/blackfan/
Fanconi Anemia
- Discusses the genetics of this condition and treatment options.
- http://www.members.cox.net/amgough/Fanconi.shtml
Kaps for Kendall
- In memory of Kendall Atkinson who died of Fanconi Anemia. Make or sponsor a hat that will be donated to children and adults in cancer and hematology treatment centers.
- http://www.kapsforkendall.com
Family Village: Fanconi Anemia
- Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease.
- http://www.familyvillage.wisc.edu/lib_fanc.htm
Fanconi Anemia Web
- An informational site for this disorder.
- http://members.tripod.com/fanconianemiaweb/
Alex and Matt Pearl
- Personal stories of two children fighting Fanconi Anemia.
- http://www.alexandmatt.com
Fanconi Anaemia
- A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
- http://www.cancerindex.org/ccw/fanconi.htm
Fanconi Anemia Fact Sheet - Jewish Genetic Diseases
- Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
- http://www.mazornet.com/genetics/fanconi_anemia.htm
Fanconi Canada
- Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
- http://www.fanconicanada.org
Fanconi Anemia Research Fund
- To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
- http://www.fanconi.org/
Hope for Henry
- This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.
- http://www.hsg.org/